On March 9, 2016, I received a call from my grandmother that my Mom had a heart attack and they were transferring her to another hospital via helicopter. I was told this was merely precautionary; however, I knew better. After a short debate, I decided to fly home to spend some time with my mother. Upon arriving and talking to my dad, my siblings and the doctors, I came to the understanding that Mom's condition was much worse than I realized. She had a heart cath; however, she waited too long to come to the hospital so her heart had suffered a lot of damage. She needed a left ventricular assist device (LVAD) to assist her heart functions until she could be put on a transplant list. I was able to help feed my Mom while I was there and spend quality time with her. I even got a good laugh out of her by telling her we could both be "bionic" together with our heart devices (she had always called me her bionic child due to my pacemaker). I got a picture of her smiling in the hospital before I flew home. I left with the hope that I would get a call from my Dad or sister saying that Mom was stable enough to be transported to a transplant hospital to receive the LVAD.
Three days after I arrived back home, I received a call from my Dad telling me that Mom had taken a turn for the worse. She started having complications and had to be intibated, put on a ventilator and she was unconscious. My Dad told me to come back to Kentucky as I had to make the decision on what to do. Devastated, I called the hospital directly and spoke to the charge nurse. I was informed that Mom would likely not recover and that the initial plan for her to receive the LVAD was not possible as she was too unstable and due to her other medical conditions, she was not a canditate for a heart transplant. Essentially, Mom was left at the mercy of the ventilators and medicatons to keep her alive and comfortable.
I got on a plane as fast as I could and flew home. My husband later loaded the car and drove the 2,000 miles from Nevada to Kentucky. Walking into that hospital room was like walking into a nightmare. Seeing my Mom lying unconscious with only a machine keeping her alive was never something I wanted to see. Upon recommendations of the doctor, we waited 48 hours from the time she was intibated on the slight chance that she may show improvement. When she didn't, we made the difficult decision to take her off the ventilator.
For two days, Mom held on. For two days, I watched her lie there as the nurses came in and out regulary to administer medications to keep her comfortable. Finally, on Monday, May 21st, I asked my husband, Josh, to drive the 2 hours from my parents house to the hospital to come pick me up so I could spend time with the kids as Mom was still holding on and there were no signs that she was letting go yet. Not long after my husband arrived, we waited around to see if anything would change before we decided to leave. Not having eaten much, we stopped less than a mile from the hospital to go through drive-thru to grab something to eat. As we got back on the road, my Dad called to tell me to come back to the hospital as Mom was slipping away. I came back and immediately checked the machines only to see that Mom's blood pressure was dropping and she kept going back and forth from a-fib to skipping beats and then her heart rate started dropping. Mom had been on oxygen up until this point so we asked that the oxygen be taken off so she could pass peacefully. The oxygen was removed and the next few moments were tragic. The sounds Mom made as she took her last breaths is something I will never forget but wish I could. As I held her hand and told her not to leave and begged her to stay so she could watch her grandkids grow, she slowly slipped away. The next thing I remember is the nurse coming in to tell us that Mom was gone. My husband, brother and Dad held on tightly to each other while holding onto Mom. A piece of us died that day along with Mom; a piece of us that we will never get back.
I waited around for a while trying to make sense of everything and talking to family before my husband, father and brother loaded in the car to make the long, numbing 2 hour drive home. I sat in the back seat hoping it was all a horrible dream and that if I closed my eyes and fell asleep, maybe I would wake up and it would all be over. After all, it was 17 months earlier that my husband had lost his mother unexpecteldy due to a hard fall down the stairs so this could not be happening all over again.
I opened my eyes not far from my parents home to the realization that it was not a horrible dream. Pulling into my parents driveway somehow had already seemed different. Walking in the door of their home and knowing she would never be there again was something I hated feeling. I saw my sister (she had stayed behind to care for her son) and my children and immediately embraced them. I was still numb but my children helped to bring me comfort and take my mind off of things.
The next day we made my Mom's funeral arrangements and a few days later, her funeral was held. I was able to see family members I haven't seen in quite some time; I saw how many people paid their respects and how many loved my Mom.
It has now been 2 1/2 months since my Mom's passing. The first few weeks after I returned home were very difficult. I didn't sleep more than 3 hours a night and had to stay busy in order to keep from constantly thinking about my Mom. Every little thing reminds me of her and sometimes memories flood my mind.
At this juncture, I have reached the anger stage of my grief. I loved my Mom dearly and yet I find myself wishing I didn't have those memories of her; the memories of watching her take her last breath. My sister wishes she were at the hospital at that time but I tell her that she was lucky because there was nothing worse that seeing that happen. Watching someone die in front of you, especially your Mother, is not something I ever want to witness again. Just today, a car in front of me had a license plate that read "Arti" (my Mom's name) and all I wanted to do was accelerate to hit the car to get it away from me. I have become less tolerant the last few days and find myself just wanting to yell and scream for no reason. I'm angry that I didn't know the heart attack signs for women well enough to warn my Mom, especially given that my grandfather and uncle both died from hair attacks/heart failure. Hell, I was born with a congenital heart defect so I, above all, should have known the signs! I hate myself for that. I hate that when I want to call my Mom, she is not there. I hate that when I want to see her face, I can't Skype with her like I used to. I hate that she's not able to call to wish her grandkids a Happy Birthday and send them cards each year. I hate that I will no longer get a call from her at midnight each year to wish me a Happy New Year! I hate that she will no longer send Christmas care packages for her grandkids and that I can't fly her out to visit. I hate that I'll no longer be able to update her with my cardiology appointments. I hate that she is gone.
I am trying to tell myself that I will get through this; that the grief is something I have to endure in order to move forward. I can't let this anger get the best of me and yet I don't know how to not let it. While it has only been a short time since she left us and the grief is still quite fresh, I know she would want me to be strong. She would tell me, "you've always been strong and stubborn so don't give up". I'm trying Mom, I'm trying.